PLOS ONE - Transgender Gender Diverse Dataset

Principal Investigator(s):  View help for Principal Investigator(s) Tiffany Ho, University of Utah School of Medicine

Version:  View help for Version V1

Name File Type Size Last Modified
20240401_DataDictionary_Ho.docx application/vnd.openxmlformats-officedocument.wordprocessingml.document 15.1 KB 04/10/2024 07:24:PM
20240401_Table4ActivelyManagedvsNot_Ho.csv text/csv 798.5 KB 04/09/2024 12:41:PM
20240401_table5GAHTvsGAS_Ho.csv text/csv 679.3 KB 04/01/2024 02:42:PM
20240401_table6GAHT_Ho.csv text/csv 563.5 KB 04/01/2024 01:38:PM
20240401_table7GAS_Ho.csv text/csv 311.5 KB 04/01/2024 02:34:PM
20240401_table8GAS_Ho.csv text/csv 111.9 KB 04/01/2024 02:34:PM
HO_readme20240408_ICPSR.txt text/plain 10 KB 04/09/2024 12:36:PM

Project Citation: 

Ho, Tiffany. PLOS ONE - Transgender Gender Diverse Dataset. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2024-04-10. https://doi.org/10.3886/E200141V1

Project Description

Summary:  View help for Summary This dataset is a retrospective study of de-identified electronic-medical record data of transgender and gender-diverse (TGD; i.e. those whose gender identity does not align with their sex assigned at birth) adults 18 years and older who receive gender-affirming care within the University of Utah healthcare system. Gender-affirming care includes gender-affirming hormone therapy (i.e. estrogen- or testosterone-based medications) and gender-affirming surgeries. The goal of creating this dataset is to contribute to the growing literature needed about the TGD population in order to facilitate public health efforts to address health disparities as well as answer clinically-impactful questions.
Funding Sources:  View help for Funding Sources University of Utah Department of Family and Preventive Medicine - Health Studies Fund

Scope of Project

Subject Terms:  View help for Subject Terms transgender; sexual minority; gender diverse
Geographic Coverage:  View help for Geographic Coverage United States, Utah
Time Period(s):  View help for Time Period(s) 1/1/2003 – 4/30/2023 (Jan 2023 to April 2023)
Universe:  View help for Universe Adults 18 years and older who identify as transgender or gender diverse, seen at University of Utah Health for gender-affirming care
Data Type(s):  View help for Data Type(s) clinical data; medical records

Methodology

Sampling:  View help for Sampling The data collection is a pooled cross-sectional time-series of transgender and gender diverse adults who were seen within University of Utah for gender-affirming care from 2003 - April 2023. We identified patients within our electronic health record using International Classification of Diseases (ICD)-9 and ICD-10 codes specific to gender-affirming care, which are consistently used in prior studies. Patient information, including labs, medications, visits, and previous ICD and CPT codes, were extracted from the University of Utah Enterprise Data Warehouse (EDW).
Data Source:  View help for Data Source Electronic health records within University of Utah 
Collection Mode(s):  View help for Collection Mode(s) record abstracts
Unit(s) of Observation:  View help for Unit(s) of Observation Individuals
Geographic Unit:  View help for Geographic Unit Zip Code

Related Publications

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Published Versions

V1 [2024-04-10]

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