Restore 1

Principal Investigator(s):  View help for Principal Investigator(s) B. R. Simon Rosser, The University of Minnesota

Version:  View help for Version V1

Name File Type Size Last Modified
  Data-Dictionary 05/20/2021 03:51:PM
Restore_I_data_ICPSR.dta application/x-stata-dta 1.6 MB 05/20/2021 07:39:AM
readme.Restore1.txt text/plain 16 KB 05/20/2021 12:16:PM

Project Citation: 

Rosser, B. R. Simon. Restore 1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2021-05-20. https://doi.org/10.3886/E137241V1

Project Description

Summary:  View help for Summary The Restore I study is a cross-sectional online survey of gay and bisexual men who have had prostate cancer treatment. The Restore I study contained 193 gay and bisexual men with prostate cancer who were recruited from the North American’s largest online cancer support group. Topics covered by this dataset include internalized homonegativity, sexual functioning, urinary functioning, and mental and physical health.
Funding Sources:  View help for Funding Sources United States Department of Health and Human Services. National Institutes of Health (1R21CA182041-01A1)

Scope of Project

Subject Terms:  View help for Subject Terms prostate cancer; gay and bisexual men; sexual dysfunction
Geographic Coverage:  View help for Geographic Coverage Canada, The United States of America
Collection Date(s):  View help for Collection Date(s) 10/21/2015 – 1/1/2016
Universe:  View help for Universe To be eligible, a participant had to check that he was:
(1) a gay, bisexual, or other man who has sex with men,
(2) who had been treated for prostate cancer, 
(3) residing in a US zip code or Canadian postal code
Data Type(s):  View help for Data Type(s) survey data
Collection Notes:  View help for Collection Notes
Gay and bisexual men with prostate cancer were recruited from the North American’s largest online cancer support group for this study.

Methodology

Response Rate:  View help for Response Rate In total, we received 502 click throughs onto our welcome page. A total of 434 (86.5%) passed eligibility, and 417 (96.1%) consented to participate. Prior to analysis, 233 surveys were deemed invalid or duplicative. In addition, one incomplete survey was also removed, leaving 193 (99.5%) surveys deemed to be from unique, valid participants.
Sampling:  View help for Sampling
Recruitment for the Restore survey was conducted online by targeting users of Malecare.org, a large North American cancer support group and advocacy organization.
Collection Mode(s):  View help for Collection Mode(s) web-based survey
Scales:  View help for Scales The survey questionnaire was in English and consisted of 15 sections with a total of about 150 questions.

Demographic questions (age, gender, race, ethnicity, and education) were adapted from the US Census. Sexual characteristic questions (identity, degree of outness, relationship status, and HIV status) were based on prior research.

Medical characteristic questions included prostate-specifc antigen or PSA level at diagnosis (a biomarker used in prostate cancer screening) and Gleason score (a measure of tumor aggressiveness) and current prostate cancer status), the wording of which was taken from prior studies.

Disease Specifc Quality of Life: The Expanded Prostate Cancer Index Composite (EPIC) is a comprehensive assessment of prostate cancer-related quality of life.

Physical and Mental Quality of Life: The 12-item Short Form Survey (SF-12) is a generic measure of health functioning yielding two subscales (mental and physical functioning) which combine to estimate overall health-related quality of life.

Gay Sexual Functioning Inventory: Given the lack of scales to comprehensively assess sexual functioning in male–male sex, we developed 37 items to assess common sexual behaviors between men, including both insertive and receptive anal sex


Unit(s) of Observation:  View help for Unit(s) of Observation Individuals

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