Delphi Panel and Cognitive Response Stakeholder Engaged Survey Development Data

Principal Investigator(s):  View help for Principal Investigator(s) Melody Goodman, New York University, School of Global Public Health; Vetta Sanders Thompson, Washington University in St. Louis

Version:  View help for Version V1

Name File Type Size Last Modified
  Community-Engagment-Delphi-Process-Cognitive-Response-Interviews 11/11/2020 11:12:PM
Cognitive Interview version A , 8-15-18.docx application/vnd.openxmlformats-officedocument.wordprocessingml.document 54.3 KB 11/11/2020 05:55:PM
Cognitive Interview version B , 8-16-18.docx application/vnd.openxmlformats-officedocument.wordprocessingml.document 54.8 KB 11/11/2020 05:55:PM
Cognitive Interview version C, 8-16-18.docx application/vnd.openxmlformats-officedocument.wordprocessingml.document 38.5 KB 11/11/2020 05:56:PM
Cognitive Interview version D, 8-16-18.docx application/vnd.openxmlformats-officedocument.wordprocessingml.document 38.8 KB 11/11/2020 05:57:PM
Cognitive interview guide FINAL.docx application/vnd.openxmlformats-officedocument.wordprocessingml.document 20.5 KB 11/11/2020 05:53:PM
Cognitive interview protocol.docx application/vnd.openxmlformats-officedocument.wordprocessingml.document 20.5 KB 11/11/2020 06:04:PM
Delphi Final Consensus Survey_Edited Codebook_09 04 18.docx application/vnd.openxmlformats-officedocument.wordprocessingml.document 58.1 KB 11/11/2020 06:07:PM
Delphi Survey 1_Edited Codebook_092917.docx application/vnd.openxmlformats-officedocument.wordprocessingml.document 132.8 KB 09/04/2018 12:00:PM
Delphi Survey 2_Edited Codebook_03 13 18.docx application/vnd.openxmlformats-officedocument.wordprocessingml.document 81.5 KB 09/29/2017 09:49:AM

Project Citation: 

Goodman, Melody , and Sanders Thompson, Vetta. Delphi Panel and Cognitive Response Stakeholder Engaged Survey Development Data. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2020-11-11. https://doi.org/10.3886/E126361V1

Project Description

Summary:  View help for Summary These data were collected to develop and understand classifications and definitions of community-engaged research that served as the foundation of a measure of stakeholder engaged research. Data on academic and stakeholder perceptions and understandings of classifications and definitions were obtained using Delphi process (N = 19) via online and face-to-face survey and cognitive response interviews (N = 16). Participants responded to survey items for inclusion, exclusion and revision,  categories and category definitions for levels of engagement, as well as engagement principles that should be included and their definitions. Cognitive interview responses addressed barriers to item, principle and category comprehension, with opportunities to suggest changes.
Funding Sources:  View help for Funding Sources Patient Centered Outcomes Research Institute (ME-1511-33027)

Scope of Project

Subject Terms:  View help for Subject Terms Delphi Process; Cognitive Interviews; Engagement Principles; Categories of Community Engagement
Geographic Coverage:  View help for Geographic Coverage Delphi Panel: MO, NY, WA, CA, TN Cognitive Response Interviewees: MO
Time Period(s):  View help for Time Period(s) 6/2017 – 8/2018
Collection Date(s):  View help for Collection Date(s) 7/2017 – 7/2017; 10/2017 – 11/2017; 2/2018 – 3/2018; 4/2018 – 4/2018; 7/2018 – 8/2018; 9/2018 – 9/2018
Universe:  View help for Universe
Delphi Process
Panelists were adults (18 and older).

Panelists were stakeholders (providers, patients, advocates, community partners) and academic researchers, with expertise in stakeholder engaged research.

Cognitive Response Interview
Participants were adult (18 years or older).

Participants had experience partnering with researchers on patient- or community-engaged research.



Data Type(s):  View help for Data Type(s) survey data; text

Methodology

Response Rate:  View help for Response Rate
Delphi Process: Round 1 - 100%; Round 2,3,5 - 94.7%; Rounds 4 - 84.2%

Cognitive Response: 100%
Sampling:  View help for Sampling Delphi panelists were recruited by email using a convenience snowball sampling approach. The snowball sampling was based on the networks of the project team members (community-engaged researchers). Members of the panel were selected from the DEAC (n = 2) and the PRAB (n = 3) as key connections to both advisory boards for the project. Panelists were selected from each of the project team members’ institutions: Washington University in St. Louis (four stakeholders, two academics), New York University (two stakeholders), and the University of Washington (two academics). In addition, nationally recognized scholars in community engagement were selected (n = 3) as well as nationally recognized community health stakeholders (n = 2). The list of panelists was shared with the funder to obtain additional recommendations for panelists. No specific panelists were suggested, but the funder requested greater representation from non-academics on the panel. To address this request, an additional three community health stakeholders were recruited to the panel.

Cognitive Response Testing. A purposive sample of 16 was recruited to complete one-on-one cognitive response interviews. Participants were recruited by email from a database of Community Research Fellows Training (CRFT) alumni, who completed the CRFT program in St. Louis, MO and through referral by CRFT alumni. CRFT was established in 2013 and maintains a voluntary database of graduates. At the time of recruitment, the database included updated contact information for 94 (75%) active alumni.


Data Source:  View help for Data Source
Delphi Panel: surveys

Cognitive Response: recorded interviews
Collection Mode(s):  View help for Collection Mode(s) face-to-face interview; web-based survey
Weights:  View help for Weights Not applicable
Unit(s) of Observation:  View help for Unit(s) of Observation Individual survey and cognitive response interview data
Geographic Unit:  View help for Geographic Unit City

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V1 [2020-11-11]

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